Congenital Cytomegalovirus (cCMV)
Did you know?
One in five U.S.-born children with congenital CMV will develop permanent problems such as hearing loss or developmental disabilities.
The cCMV project united the Iowa SET-NET site, the National CMV Foundation, the Iowa Academy of Family Physicians, the Iowa Chapter of the American College of Obstetricians and Gynecologists, the National AAP, and the AAP Iowa Chapter to develop a comprehensive data-informed communication strategy.
The goal is to deliver a compelling, far-reaching message to pediatricians and family physicians across Iowa. Our collaborative effort integrates insights from pediatricians, public health experts, national organizations, and families, fostering a well-rounded understanding of cytomegalovirus (CMV) and underscoring the critical importance of screening and follow-up for all children.
This project encompasses three phases with partnerships to enable us to strengthen our existing collaborations, pursue additional partners to expand our reach, distribute new educational materials for diverse audiences, and enhance our state's efforts to track data. This initiative aims to inform public health professionals and families about the risks of exposure, the impact of CMV, and effective prevention strategies, all in support of protecting the children and families of Iowa.
Phase 1 & 2: AAP Chapter/SET-NET Team Communications Campaign (2024)
This handout is focused on what mothers need to know about cCMV, symptoms, and how to minimize risk.
This handout is focused on healthcare providers and has general information on how to talk to families about CMV risk, testing, and follow up care.
cCMV: Prevention, Screening, and Treatment is a recorded educational webinar with a focus on congenital cytomegalovirus provided in 2024.
This webinar comprised of panelists:
- Tammy Hoffman, a mother and caregiver with lived experience
- Kim Noble Piper, a team member on Iowa's SET-NET team
- and Dr. Joel Waddell, DO, an infectious disease specialist
They provided various perspectives on how to be aware of and reduce the risk of CMV transmission to protect the health and wellbeing of Iowan families. You can watch the video linked here or on our YouTube Channel.
SET-NET Phase 2 Final Products Download
Phase 3: AAP/SET-NET Emerging Threat Partnership Project (2025)
Brochures
This brochure focuses on what parents-to-be need to know to reduce the risk of cCMV, rates of transmission, and screening and assessment postpartum.
This brochure focuses on CMV information for healthcare providers. Information includes infection rates, how cCMV impacts infected newborns and development, and symptoms as well as asymptomatic information.
This brochure provides information on how to talk with pregnant caregivers about CMV, rates of transmission, and how to reduce the risk of infection for both mothers and newborns.
Handouts
This handout covers what parents-to-be need to know to reduce the risk of cCMV, rates of transmission, and screening and assessment postpartum.
This handout covers CMV information to inform healthcare providers. This includes infection rates, how cCMV impacts infected newborns and development, and symptoms as well as asymptomatic information.
This handout covers how to talk to pregnant caregivers about CMV, rates of transmission, and how to reduce the risk of infection for both mothers and newborns.
SET-NET Phase 3 Final Project Deliverables Download
Upcoming:
From Knowledge to Action: Reducing the Risk of Congenital CMV; A Webinar for Pediatric and Primary Care Teams August 27, 2025 at 12 PM
Panelists:
- Dr. Joel Waddell, DO; Pediatric ID Specialist
- Dr. Patrick Courtney, MD; Family Medicine
- Amanda Devereaux, RN, BSN; previously with the National CMV Foundation and lived experience as a mother with a child born with cCMV
